Patient Advocacy Group

The Australian Merkel Cell Carcinoma Patient Advocacy Group was first convened in 2017, with Merkel Cell Carcinoma patients and carers attending. AMIGOs hope to empower the patient advocacy group to provide valuable input into development of treatments in Merkel Cell Carcinoma.

The patient voice is an important one to drive improvements in the treatment and care for this rare and lethal cancer.

To join the mailing list for the advocacy group, please email us at amigos@masc.org.au

Patients and carers may feel isolated due to the rarity of this cancer. There are many support groups listed on the support tab in case you require further information or someone to speak to.

If you are willing to get more involved actively in a volunteer role, we are seeking Merkel Cell Carcinoma patients, family members and carers to be involved in working as a patient advocate. For more information on the advocacy group, please email us at amigos@masc.org.au.